Julie and Peter Ostiguy are the proud
parents of Olivia. At 22 weeks pregnant, Julie and Peter were told by doctors
that Olivia had a complex heart defect called Hypoplastic Left Heart Syndrome
(HLHS), essentially leaving her with half a heart. Cardiologists at Children’s
Hospital Boston gave her a 90% chance of survival. While performing the first of
three scheduled surgeries soon after she was born, doctors discovered that
Olivia’s heart was much worse than anticipated and she had an inoperable
coronary artery defect. She came out of surgery at 6 days old on life support.
Olivia passed away while awaiting a heart transplant. She was just 13 days
old.
Soon after Olivia lost her fight, Julie and Peter decided to start Olivia’s
Heart Fund to help others in their battle with Congenital Heart Defects (CHD)
through funding vital CHD research. They are continuing Olivia’s fight so that
no child’s battle is ever in vain.Olivia’s Heart Fund is a volunteer run organization and our board members do not receive compensation so that 100% of a donors contribution goes directly toward fulfilling our mission.
OHF’s mission is to fight back against the number 1 birth defect, Congenital Heart Defects (CHD), by funding vital and promising research, increasing public awareness and education, and supporting those affected by CHD.
You can support Olivia's Heart Fund by participating in OSHD's Chocolate Festival this Saturday.
To find out other ways you can help, check out Olivia's Website: http://oliviasheartfund.org
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